What is a cancer support group?
A cancer support group is one where its members share their feelings and experiences with others affected by cancer. Groups can be face-to-face, online or via telephone.
- Who runs a support group?
- What do support groups offer?
- Why should I consider joining a cancer support group?
- How do I become a member?
- What kind of topics do groups discuss?
- Are all groups face to face?
- Organisations who offer support groups
- Are there any groups that deal specifically with grief, loss and bereavement?
- Setting up and managing a cancer support group
Who runs a support group?
Many support groups are facilitated by someone affected by cancer, these are referred to as ‘peer support groups.’ A facilitator is responsible for leading or coordinating the group. Some support groups involve someone with a professional background who can add particular skills and information to the valuable experience of someone affected by cancer. They might be the facilitator or co-facilitator, or be a guest speaker.
What do support groups offer?
Support groups can offer a confidential, supportive place to share experience, learn from and connect with, others affected by cancer. Some groups have a special focus, like breast cancer, for couples or for people who care about someone with a cancer diagnosis. Support groups offer practical and emotional support. Many support groups offer guest speakers on topics of interest.
Why should I consider joining a cancer support group?
Joining a cancer support group can be a helpful option if, for example, you feel alone and unable to talk to those close to you, if you are experiencing side effects from treatment, are after tips about talking to health professionals, or to express frustrations, fears and anxieties. You may also want to share your own tips for the benefit of others.
How do I become a member?
Groups can operate on an ‘open membership’ policy, so people come and go as they choose. Groups might be open to anyone affected by cancer or they might be more specific. Not all groups are equipped or choose to discuss all aspects of managing cancer - for example contemplating death and dying. There are groups that do and it is important to discuss your needs with the local Cancer Support Coordinator so that your particular needs can be considered and where possible, met appropriately. Call Cancer Council 13 11 20 for your nearest coordinator. If a particular support group will not meet your needs, there may be alternative options put forward for you to consider.
What kind of topics do groups discuss?
- Coping with a cancer diagnosis and treatment
- Living with cancer and changes to everyday life
- Tips and information from those who’ve been through the same thing
- Nutrition, exercise, complementary therapies and other strategies to sustain someone on their cancer journey
- Some groups have a special focus and/or discuss issues about facing death and bereavement.
Are all groups face-to-face?
If you are someone who finds it difficult to leave the house, to share intimate feelings face-to-face, or are simply very unwell and need to conserve your energy but would value contact with others, there are alternative forms of support that could be helpful.
- Cancer Council Western Australia offers one-to-one peer support by phone and access to the expertise of cancer nurses who staff Cancer Council 13 11 20.
- Cancer Council Online Community is an online support program that links people with cancer, their carers and families. It provides a moderated discussion board, the ability to create your own profile, and to find others who share a similar cancer journey to yours. It also runs some interesting forums for different groups of cancer patients on topics that may interest you. If you need some help to access this program, please call Cancer Council 13 11 20.
- Telephone support groups offer support and information to adults affected by cancer, including patients, their families and carers. They are facilitated by appropriately qualified professionals. To access this service or to find out more, please call Cancer Council 13 11 20 or email: tsg@nswcc.org.au
Organisations who offer support groups
- Breast Cancer Care WA Ph: (08) 9324 3703 / email: info@breastcancer.org.au
- Brain Tumour Alliance Australia Ph: 1800 857 221 / email: enquiries@btaa.org.au
- CanTeen supports young people aged 12 - 25 who have been affected by cancer.
Ph: 1800 835 932 / email: wa@canteen.org.au
- Camp Quality provide services and programs for kids facing cancer; in hospital, at home, at school or away from it all. Ph: 02 9876 0500 / email: admin@kcsg.org.au
- GAIN (Gynaecological Awareness Information Network)
- James Croft Hope Foundation Brain Tumour Cancer Support Group
- Kids Cancer Support Group Ph: 0435 741 833 / email: admin@kcsg.org.au
- Leukaemia Foundation Ph: 1800 620 420 / email: info@leukaemia.org.au
- Melanoma WA Ph: (08) 9322 1908 / email: wa@melanoma.org.au
- Myeloma Australia Ph: 1800 693 566 / email: nurses@myelanoma.org.au
- Ovarian Cancer Australia Ph: 1300 660 334 / email: admin@ovariancancer.net.au
- Prostate Cancer Foundation of Australia Ph: 1800 220 099 / email: enquiries@pcfa.org.au
- Sock it to Sarcoma Ph: (08) 9427 1744 / email: admin@sockittosarcoma.org.au
Ph: (08) 6458 1670 (leave message) / email: enquiries@gain.org.au
Ph: 0428 247 319 / email: info@jamescroftshopefoundation.org.au
Are there any groups that deal specifically with grief, loss and bereavement?
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Life After Loss - Telephone Cancer Support Group
Contact: Cancer Council 13 11 20
Setting up and managing a cancer support group
Interested in setting up a cancer support group or want help with the ongoing delivery of a current group? We have compiled a list of useful resources and information on setting up and managing a cancer support group.
For more information about any of the support groups, please contact the Cancer Council 13 11 20.
Every effort has been made to ensure the accuracy and comprehensiveness of the information listed above. However, if you know of any services that have not been listed or if the listing is no longer accurate, please call Cancer Council 13 11 20.
Inclusion of a service does not imply its endorsement by the Cancer Council.